Health-related quality of life in children with surgery for CHD : a study from the Swedish National Registry for Congenital Heart Disease

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Health-related quality of life in children with surgery for CHD : a study from the Swedish National Registry for Congenital Heart Disease

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Publication Article, peer reviewed scientific
Title Health-related quality of life in children with surgery for CHD : a study from the Swedish National Registry for Congenital Heart Disease
Author Svensson, Birgitta ; Nilsson, Fredrik ; Liuba, Petru ; Idvall, Ewa
Date 2017
English abstract
As survival of children with CHD needing surgery has improved significantly, the need for follow-up in terms of health-related quality of life has become increasingly important. In this study, we sought to describe health-related quality of life in children with CHD in relation to cardiac surgery. Methods: A retrospective Swedish National Registry for Congenital Heart Disease survey measured using DISABKIDS chronic generic measure-short version included 337 children (age 9-17 years; 39% girls). The majority (n= 319, 95%) of children had a biventricular heart, whereas the remaining had a univentricular heart. Cardiac surgery was performed in 197 (58%) children. Health-related quality of life was expressed as total score (100 highest) and given as medians and 10-90th percentiles. Results: The overall total score was 95 (88-100). Children with a biventricular heart who had undergone three or more surgeries (n= 31; 9%) had the lowest total score of 81 (61-97; p< 0.001). Children with two or more surgeries and those with univentricular heart were classified in NYHA II more frequently than children with one or no cardiac surgery (p= 0.005 and < 0.001, respectively). Children with three or more surgeries and those with univentricular heart needed more help at school (p< 0.001). Compared with children with other chronic diseases, children with CHD had a high total score except for children with three or more surgeries who had comparable total scores with children with other chronic diseases. Conclusion: Children with three or more cardiac surgeries and those with a univentricular heart appear to have lower health-related quality of life, cognitive ability, and NYHA classification.
DOI https://doi.org/10.1017/S1047951116000585 (link to publisher's fulltext.)
Link https://www.cambridge.org/core/journals/cardiology... (external link to publication)
Publisher Cambridge University Press
Host/Issue Cardiology in the Young;2
Volume 27
ISSN 1047-9511
Language eng (iso)
Subject Health-related quality of life
CHD
children
registry study
Medicine
Research Subject Categories::MEDICINE
Handle http://hdl.handle.net/2043/23531 Permalink to this page
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